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Loughborough University

Information needs of people with multiple sclerosis (MS)

This research took place in 2002 and involved a survey of 103 people via focus groups, 2030 via returned questionnaires and 5 people using audio diaries. It was commissioned and funded by the MS Trust. Categories of information need were identified (both health related and general life information). Important and difficult to find information was highlighted. The need to provide information in a way that is related to the users physical and psychological condition was recommended. Finally although information provision by service providers has improved dramatically over the last ten years there was seen to be a need for improvement both in terms of subjects covered and consistency of provision.

URL: www.lboro.ac.uk/departments/ls/staff/mhepworth.html
Contact: Mark Hepworth, Lecturer, [email protected] or Janet Harrison, [email protected]
Dates: 01/02/02 to 01/11/02
Funding: MS Trust (£40,000)

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